Being Emily


  • Photographer
    José Javier Delgado Esteban
  • Prize
    Honorable Mention
  • Company/Studios
    José Javier Delgado Esteban
  • Date of Photograph
    2005 - 2015

On the 22nd of January 2005 the non-identical twins Lorca Sebastian and Emily Carmen were born. Emily was diagnosed with Down's Syndrome the following day.

Story

On the 22nd of January 2005 the non-identical twins Lorca Sebastian
and Emily Carmen were born. Emily was diagnosed with Down's
Syndrome the following day.

As a photographer and father I started documenting Emily's life from
the early times of uncertainties to the spell-bounding progress she has
made and the raw charm Emily selflessly gives anyone she encounters.
The images in this collection show many different aspects of living with
Emily taken in the UK and Spain form 2005 to 2015.

People with Down’s Syndrome are now much more part of society but
there is a long way to go. The viewer can see these images where Emily
is portrayed candidly as a young girl full of dreams, aspirations, wants,
needs, likes and dislike...just like anyone else.

Down's syndrome or Trisomy 21, is a genetic disorder caused by the
presence of all or part of a third copy of chromosome 21.

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